consultation_document_final_25_april_2016.pdf
(1.51 MB, PDF)
… as in outcomes research. As a result, increasing attention is being focused on economic evaluations studies in the youth sector. However, methods and instruments which are used in economic evaluations have been developed for somatic (health) care and moreover for an adult population, making it challenging to perform economic evaluations in the youth sector. Objective The aim of this broad consultation is to reach consensus regarding the steps which have to be undertaken to set a research agenda … guidance for some, 10 but not all, issues and challenges. For the outcome side of the economic evaluation, normative questions have been posed such as: what goal of psychosocial care for youth should the outcome(s) comply with, and whose values count when obtaining preference weights for the outcome? Furthermore, respondents urged that, in order to perform economic evaluations in the youth sector, they needed instruments specifically developed for youth, such as instruments to measure costs, … method) Development of a QoL instrument for youth Suggestion: Rotterdam Wellbeing of Youth Scale (R-WYS; not yet available), TAPQOL (not preference-based), HUI Adapt outcome measurement according to age Add dimensions to generic instruments ‘Best’ proxy may vary per child and even per measurement (example CBCL) Guidance/guideline with respect to proxy measurement Focus only on outcomes in child, as no accepted methods are available for including outcomes in others (in QoL research) …