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… Javalkar et al., 2017 150 mothers and children with a chronic condition Cross-sectional with a web- based survey with 22 items about the caregiver burden. Patients with lower child self- efficacy, frequent primary care provider, and emergency room visits, and the amount of medicines and injections were predictors of increased caregiver burden. Programs and interventions to improve patients' health-related self-efficacy alleviated the caregiver burden. Emotional, Practical & Psychological … characteristics by Authors, Sample, Method, Findings/Conclusions, and Domains of P-SCNF (continued) Authors Sample Method Findings/Conclusions Domains of P-SCNF Pelentsov, Fielder, Laws & Esterman, 2016 301 parents with a child with a rare disease An online survey consisting of 45 questions about the perceived level of satisfaction with receiving care, experiences and needs of providing daily care, the impacts of disease on relationships, the emotional and psychological burdens of disease, and … they regarded as necessary. Most distressing experiences were that parents realised that their child was going to die, parents seeing their child suffering, and to plan the funeral. More than 80% of the parents found it essential or very necessary to visit the child every day, to discuss the treatment options, and to have up-to-date information about the treatment. Emotional, Informational, Physical, Practical & Psychological 16 Table 1: Study characteristics by Authors, Sample, Method, …