LAMA2-MD Conference: Getting Closer to a Treatment for LAMA2 RD

After successful conferences in Maastricht (2019) and Barcelona (2023), we are pleased to announce the third LAMA2-RD-focused meeting, to be held in Istanbul, Türkiye, from March 27–29, 2026. The event will bring together clinicians, researchers, patient organisations, patients, and families to share progress in understanding and treating LAMA2-MD.

While patients have been involved in previous meetings, their participation will now be a strong focus. LAMA2-MD is a rare condition and most patients, or their families never meet others with the same condition, and clinicians may see only one or two cases in their careers. This will offer a unique opportunity for patients, families, and experts to connect, share experiences, and learn from one another.

This conference is an initiative of the research group of Bert Smeets (MHeNS, Maastricht University) together with Bram Verbrugge (Foundation Voor Sara and LAMA2-Europe) and Professor Haluk Topaloğlu (local organization, Nişantaşı University).  

Please visit the website for further information. 

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