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… characteristics by Authors, Sample, Method, Findings/Conclusions, and Domains of P-SCNF (continued) Authors Sample Method Findings/Conclusions Domains of P-SCNF Pelentsov, Fielder, Laws & Esterman, 2016 301 parents with a child with a rare disease An online survey consisting of 45 questions about the perceived level of satisfaction with receiving care, experiences and needs of providing daily care, the impacts of disease on relationships, the emotional and psychological burdens of disease, and … characteristics by Authors, Sample, Method, Findings/Conclusions, and Domains of P-SCNF (continued) Authors Sample Method Findings/Conclusions Domains of P-SCNF Zurynski et al., 2017 462 parents caring for children with a rare disease in Australia An online survey send to families with a child aged <19 years to research the experiences of diagnosis and perceived consequences of diagnostic delays. When diagnoses are delayed, families, parents and their child, had frustration, stress, and anxiety. 8% … et al., 2017; Yoshida et al., 2014; Zurynski et al., 2017). Yet, a rare disease is mostly connected to scarce information. Moreover, after the diagnosis parents were disappointed with the information given by HCPs (Zurynski et al., 2017) and searching online is for parents on various occasions a wonderful tool, but also a dangerous tool, because when information is found it can be frustrating and scary, because parents might learn how the disease might develop over time (Somanadhan & Larkin, 2016). …

… Keynote, presented at the 2021 PANPBL conference: Transforming PBL through hybrid learning models, Aalborg, Denmark. Fluit, L., Dolmans, D. (2021, Oct). How can we support the development of a teacher identity? AMEE FACDEV Journal club meeting. AMEE, online. Dolmans, D. & Sehlbach, C. Workshop: Active Learning Methodologies: Principles and Practice. United Arab Emirates University, College of Medicine and Health Sciences, UAE, January 15, 2020. Sehlbach C & Dolmans, D. Workshop: Rethinking the … University of Western Sydney, Australia, Nov 19, 2018. Dolmans, D. and Atherley, A. Workshop Planning and Conducting Design-Based Educational Research. University of Western Sydney, Australia, Nov 20, 2018. Faculty Development: Quo Vadis? Interactive online lecture. Virtual Grand Rounds session. American College of Surgeons, Division of Education, Chicago-Maastricht, Sept 14, 2017. Does problem-based learning enhance deep learning? Webinar PANPBL Association, San- Paulo-Maastricht, December 5th, … Research Integrity and Data Management. Introductory course for PhD candidates at the Interuniversity Centre for Educational Sciences, the Netherlands. April 20, 2020. 4. Dolmans, D. Workshop: Design-Based Research: Bridging theory and practice. Online: New York University, School of Medicine, Master of Health Professions Education. July 7, 2020. 5. Dolmans, D & Bokhoven, L. Workshop: Conducting Design-based educational research. Maastricht University, Jan 11, 2019. 6. Dolmans, D, & de Groot, …